PCORI Stories
What does patient-centered research look like in the field? These short features provide a glimpse into the workings of the studies and projects we support. Hear from researchers what it’s like to partner with patients and other stakeholders, and from patients about being part of a research team.
Displaying 1 - 25 of 75 results
Partnership: The Heart of Patient-centered Care
A PCORI Advisory Panel member shares his experience surviving cardiac arrest and building new models of partnership for better health, wellness, and health care.
Enhancing the Delivery of Mental Health Services to Children in Underserved Areas
Study designed to address parents’ concerns demonstrated usefulness of mental health coordinators equipped with telehealth platforms.
'It's Nonjudgmental Support': Breathing Easier with the Healthy Lungs Program
Comparing approaches to help longtime smokers quit smoking for good.
'You Have to Meet People Where They Are to Help Them': Patient Advisors Guide Successful Diabetes Self-Management Study
Comparing individually tailored text messages with other approaches to encourage people with diabetes to take care of themselves.
Changing the Conversation about Intellectual and Developmental Disabilities in the Community
A world-famous puppeteer and a community activist bring their firsthand experiences with disabilities to a PCORI-funded project to provide easier access to community venues for children with intellectual and developmental disabilities and their families.
Empowering the Marshallese Community in Managing Type 2 Diabetes
New research shows tailoring diabetes education to meet cultural needs can significantly improve blood sugar levels in Marshallese patients with type 2 diabetes.
Breaking Down Barriers for Children with Intellectual and Developmental Disabilities and Their Families
How an occupational therapist is helping those with intellectual and developmental disabilities participate in their communities through a PCORI-funded project.
Improving Life for Women with Parkinson's Disease
PCORI Engagement Award supports the creation of a national, prioritized women and Parkinson’s research and care agenda.
Health Risks for Each Individual, Not for the Average Patient
Study results often predict the benefit a treatment could have for the average patient. A PCORI-funded project is using personal health characteristics to move beyond averages and predict the benefit a treatment could have for individual patients.
Preventing Postpartum Depression Closer to Home
A PCORI-funded study compares the effectiveness of prevention programs led by lay home visitors and mental health professionals that teach mothers-to-be the skills to improve their moods and bond with their babies.
Spreading a Communication Plan to Improve Patient Safety in Hospitals
Engaging parents as active participants in pediatric hospital rounds slashed the rate of medical errors. Now, the research team is working to expand the program from seven to 21 hospitals.
Kentucky Community Fights Back against Cardiovascular Disease
In a region where cardiovascular disease risk is extremely high, a combination of self-management classes taught by trained community health workers and buy-in from community leaders led to a significant reduction in cardiovascular disease risk.
Engagement Awards Teams Ride Momentum to Research Projects
The Eugene Washington PCORI Engagement Awards build communities to participate in patient-centered outcomes research. But three Engagement Awards teams are doing more than participating in research—they are conducting it.
Thriving in School after Childhood Cancer
PCORI awardees provide tools for easing the path to education for survivors.
Expanding the Multiple Sclerosis Research Toolbox
A PCORI Engagement Award explores new avenues for increasing minority community participation in research.
Research to Help People with Serious Mental Illnesses Improve Their Health
People with serious mental illnesses often struggle to receive care to address common chronic physical health problems. PCORI-funded research projects are testing ways to help people with serious mental illness get the physical health care they need.
Coordinated Treatment Planning Shows Promise for Patients with Lung Cancer
People with lung cancer need several specialists for treatment. A PCORI-funded project found that with up-front treatment planning among the different specialists, patients get treatment that is more appropriate for their cancer’s severity.
Bringing Older Adults' Voices to Research
An advisory board of residents of skilled nursing facilities and older adults who live at home provides input to studies.
Bone Marrow Transplants: More Than Just Survival
An engagement awardee develops an agenda for research about the procedure’s impact on patients and caregivers.
A Less-Invasive Way to Replace a Heart Valve: Is Newer Better?
A nonsurgical method to replace the aortic valve turned out as safe as surgery and allowed more patients to go home from the hospital, rather than to a nursing home or rehabilitation facility.
Engaging Communities to Improve Depression Treatment
A coalition-based approach to care, bringing together clinicians and community members, helped people from low-income minority groups.
Choosing the Right Breast Cancer Treatment
Research team aims to understand the effects of choosing double mastectomy on women’s cancer distress and body image.
Improving Health in the Mississippi Delta through Powerful Engagement
A PCORI Engagement Award enables a cancer awareness and prevention program to expand its reach within rural, largely African-American communities facing high cancer rates.
Engaging with Families Is Key to Addressing Childhood Obesity
Tailored coaching and educational text messages for families, as well as clinical decision support tools for pediatric providers, seemed to help children with obesity and those who are overweight lower their body mass indexes.
Can Telehealth Improve Care?
Telehealth has the potential to provide access to care for a wide variety of populations that are now underserved. Two PCORI-funded studies are using telehealth in different ways to test its potential.
